Brody was born at 34 weeks on 4/25/06 due to a placental abruption. He was delivered stillborn by emergency c section and was revived. We're grateful for everyday we get with our amazing little man.
Brody was born at 34 weeks on 4/25/06 due to a placental abruption. He was delivered stillborn by emergency c section and was revived. Unfortunately, he was without oxygen for 17 to 22 minutes which caused global brain damage. We were told that he would never 'wake up' and that the ventilator was the only thing keeping him alive. We went against their suggestion to disconnect life support (the doctors told us we were just being selfish keeping him alive) and when he pulled the vent out at 2 weeks old, he went straight to room air with no support at all.
He has a whole slew of diagnoses stemming from the damage done.... but the ones at the top of the list are Severe spastic quadriplegic cerebral palsy, cortical visual impairment and uncontrolled epilepsy. At 11 years old, he's as big as a typical child but is very much like a newborn still: he is totally dependent on us as he doesn't hold his own head up and has a gtube for all of his nutritional and medicine intake because he aspirates fluid into his lungs. He has 100's of different types of seizures a day, and his health at this time doesn't allow him to go to school or anything so we spend everyday together. Getting him out of the house is tough because we don't have an accessible van(we have a lift chair, but not a chair lift, so he uses a fully supportive car seat and he has just about outgrown the selections available) and he has trouble with temperature regulation (his body can't adapt to big changes in temp, humidity, etc and he'll just stop breathing because he's overheated or too cold).
That is the medical side of him, but there's so much more to our B than that. He has a smile that will light up any room and big brown eyes that are so expressive...we know he understands more than the doctors give him credit for. We were told, even after extubation, that he would never know who any of us were and that he would never feel anything,but nothing could be further from the truth! He definitely knows his parents and his siblings and reacts to anyone who takes the time to say 'Hi!'. He is loved continually and unconditionally and we know that he knows that. And, he is one of the few children that has been enrolled in and then discharged from Starshine,CCHMC's Hospice program, 3 times so we know he's a fighter.
We're grateful for everyday we get with our amazing little man.