Evan suffer from daily seizures associated with Lennox Gastaut Syndrome, Severe Cerebral Palsy and con not eat, walk, talk, sit up, communicate, or even handle his secretions.
Evan is 13 years old. He has 7 siblings, two have passed away. Evan was born prematurely at 25 1/2 weeks and was a twin. He fought for four months in Newborn Intensive Care Unit (NICU), and won!
He suffer from daily seizures associated with Lennox Gastaut Syndrome, Severe Cerebral Palsy and con not eat, walk, talk, sit up, communicate, or even handle his secretions. Evan has had a nurse since he was two, and I even went to school to become one of his nurses as well.
Currently the Ohio Department of Developmental Disabilities (DODD) is taking most of the nurses away from kids like Evan because it costing the state a lot. That's the battle we are facing as a family now.
Evan has been steadily declining and deserves happiness as much as anyone. He doesn't get to go many places because of his seizure frequency and there being nowhere to change him. One of the things Evan really does enjoy, is the pool his family put up last summer. A the end the summer last year we were told we had to put up a fence if we want it up again this year. Even's family rents their home, so a temporary fence around the pool would allow Evan to continue to enjoy the experience at his home.