JayLynn is an amazing young lady who has been not only affected by one chronic illness but by two requiring her to fight for every new day. In her 9 years, she has spent more than 90% of her life in the hospital setting.
Jaylynn is the first born daughter of Michael & Paige Mozingo. Due to the difficulty surrounding her care she is now in the custody of her paternal grandmother, Alberta Mozingo. JayLynn was born at full-term at Riley hospital. During the delivery, she sustained a brain hemorrhage, broken arm and collar bone. She was diagnosed with cerebral Palsy and spent the first 3-4 months in Riley due to severe feeding issues and seizures. She came home on a NG tube and was converted to a G-tube at 6 months - thus she has never been able to effectively sustain her nutritional needs without the use of alternative feeding. The first 3-4 years of her life she had more than 40 hospitalizations due to severe seizures before her care was transferred to Cincinnati Children's Hospital.She received therapy through First Steps (birth to three) and then the school systems as well as outpatient therapy (when not hospitalized) and at the hospital when she is well enough to tolerate handling. Prior to being diagnosed with leukemia, she was non-ambulatory but would hop on her knees to get across the room to items of interest. She had never spoken but would produce a mesmerizing smile when looking towards Barney, her favorite TV show. She was dependent for all feeding and personal care as well as mobility.
After being diagnosed with Leukemia, she spent the first 10 months hospitalized losing the ability to hop or have the strength to hold up her head to watch TV or look in her Grandma's loving eyes. She has been home for several weeks at a time only to have to go back into the hospital for then several months due to relapsing. (Greatest length of time being home is 1.5 months). She currently receives home care from Margaret Mary Home Health Occupational and Physical Therapy due to being severely immunocompromised when she is not in the hospital. However, attempts to regain previous levels have not yet been achieved.
She receives more than 35 medications being pushed into her GJ tube daily. She continues to try to fight the leukemia but her course is being hi-jacked by intestinal difficulties resulting in profuse vomiting and inability to have lab levels consistent with receive the chemotherapy medications. She continues to baffle all the medical professionals in trying to figure out how to help this little girl be able to play and enjoy life.
JayLynn is an amazing young lady who has been not only affected by one chronic illness but by two requiring her to fight for every new day. In her 9 years, she has spent more than 90% of her life in the hospital setting. When she is home, her grandmother is her primary caretaker who leaves her side only to go to work on third shift while Papa Brian covers the night shift after working 1-2 jobs during the day in order to pay the bills associated with taking care of a profound medically complex person. While in the hospital, Grandma stays by her side 24/7 to make sure JayLynn is never alone. JayLynn should be nominated as an Angel because her life has been a constant struggle and she deserves to be pampered and showered with devices that her insurance will not and her custodians cannot afford. JayLynn is a fighter!