We are sad to announce that on April 16, 2020 we had to say goodbye to Riley Hughes (Cincinnati, Ohio). Family and friends can light a candle as a loving gesture for their loved one. Leave a sympathy message to the family in the guestbook on this memorial page of Riley Hughes to show support.She was loved and cherished by many people including : her parents, Robert Hughes and Melissa Hughes; her siblings, Morgan Hughes and Buddy; her grandparents, Charles and Sherry Kalous; her step-grandparents, Dennis and Carol McCoy; her aunts and uncles, Mark Kalous (Cheryl), Christopher McCoy (Cara), Chrissie Roaden (Mike) and Andy Hughes (Stephanie); her great-grandparent Mabel Kalous (late Chuck); her cousins, Michael Strole (Tabby), Stacey Cooper (Brandon), Cade McCoy, Brock McCoy, Bryson McCoy, Amie Turner, Sarah Roaden, Jayde Hughes and Jonah Hughes; and her close friend Morgan Frank. She was also cherished by Aunts, Uncles, Cousins.
Riley was born with a rare Congenital Heart Disease and was diagnosed with Tetralogy of Failot with Pulmonary Atresia and DiGeorge Syndrome.
For her entire life the hospital has been her second home and throughout her short life she underwent over 80 surgeries Including 4 open hearts. No matter what Riley has been through she has never broke her kind-hearted spirit that has touched so many. Everyone that meets Riley says her smile and sweet kindness melts their hearts and just wins them over.
Riley's longest stay in the hospital was July of 2019 and Riley's condition worsened throughout the stay. She had multiple surgeries and went into Cardiac Arrest. Instead of starting her Freshman year of high school she remained in the hospital for almost 6 months. Her Doctor's considered doing a double lung and heart transplant but decided she would not make it through a surgery of that magnitude. Since they decided to not do any major surgery and couldn't do anything else to help her we decided to bring her home, They didn't give her much time and didn't think she would even make it to Christmas. So after a long process of figuring things out Riley came home under Star Shine Hospice and she has been home for 4 weeks now and is still fighting for her life. We are still adjusting to life at home with Riley being on a ventilator with a Trach, Suction machine, G-tube and Gj-tube, and a Picc line for access, She has a hospital bed in our family room but really can't do much. We have been waiting for approval since June 2019 for a power wheelchair but it keeps getting denied. Hopefully our insurance will eventually approve it. She hasn't had a shower or bath since we left the hospital and it would be nice to get her upstairs but we would need a stair lift which Medicaid Waiver may pay for if she gets re-instated. We would need a walk-in tub to even give her a bath or shower. Another thing she would like would to be able to have is privacy in a separate room which could be added off our kitchen. Right now we are all living in the family room.
Riley enjoys watching movies and you tube videos, listening to music, playing games, spending time with her family and friends and her dog Buddyl Riley even enjoyed swimming and playing golf when she could. She was great at Putt-Putt and we would always have to play at least once while we were on a family vacation. Riley is the sweetest girl you will ever meet-even if she has never met you before she will open her heart to you. Channel 5 has done 2 featured stories on her this past year. One when her school had a prayer vigil for her and one right before we brought her home before Christmas,